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Sunday, 19 January 2014

A Small Victory

For Little Mr K!



For those of you that don't know we always felt something was different with lil mr K's left leg since he started walking just before 2 years. yes he was a bit delayed but so was my eldest son so thought nothing of it then, 
Until that is he started walking then it was apparent. But we didn't get a diagnosis until just before he was 3 year's old.
Little Mr K has Cerebral Palsy caused by Periventricular Leukomalacia a form of white matter brain injury sustained during pregnancy or birth.


Thankfully he has it mild enough to be able to do most things but he still needs treatments and therapies and help with some tasks, But he does things even if in his own way. He is a joy!



Anyway so last week we were at Physio with little man we saw a new therapist this time so she had all his medical notes with her, But ere's where it gets good....
All the targets mr K had been set for the previous year he not only met but some of them he has doubled...
Way to go little man Mummy is proud!

So anyway she is going to go into school and arrange a tougher set of exercises for him to do weekly with is TA and send myself a copy to do at home.
She was so impressed she said that his hard work in physio is really showing.


His balance is still off as is to be expected and he is still tight in his calf muscle and hamstring but they are thinking of doing another bout of serial casting where he has a plaster cast on for a week go's back has that off then another put on there and then and so on for a few weeks to give a continued stretch as it worked so well last time.
And there was no mention of the S word.....SURGERY which was something they've been thinking of doing so hopefully we can hold off...for a while at least!

We are at Neuro - Disability clinic on Wednesday the 22nd so will see what his doctor says then, But for now things are good.


Little mr K has always said his condition is his superpower and that his therapies are to charge his powers..... I tend to agree he is definitely my superhero!


We love comments here why not pop a little one below and send little mr K a virtual high five I know it'll make is day like he does mine!

29 comments:

  1. awww super power is a great way of him looking at it! well done to him doing so well on his targets!

    anna (intheplayroom)

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  2. Oh bless him and his motivation and perseverance x

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  3. Good progress Mr K. My goddaughter has cerebal palsy and like Mr K struggled at first, however she is now 9 and although not the best at sport she can do everything her friends do!

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  4. wow - you have an amazing son there! Well done little Mr K :-)

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  5. High 5 Mr K - Mummy is right to be proud of you xx

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  6. Thank you all for your kind words if only you could see Mr K's grin right now :D ...this big x

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  7. Aw bless him - no wonder you're proud x x

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  8. Well done to him! Sounds like he is doing amazingly well!

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  9. This is not a small victory but a really big one. It's great. I'm proud of you, Lil Mr. K.

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  10. Well done Mr K! And how cool that he looks at it as a super power! No wonder your a proud Mummy! x

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  11. Thank you all I'm so proud of him and well bloggingastrid you know I did try to be modest lol super proud!

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  12. Great post. He sounds like he's doing amazingly! My sister has cerebral palsy, and she had a similar class that did wonders. High five on it's way!

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  13. Wow amazing story and great news!

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  14. Well done little Mr K. You are doing your Mummy so proud. *High five*

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  15. Well done to him! It is wonderful, and no surgery is always great. I used to dread going into the doctor's office because of the surgery threat over us... It is great that he has met and doubled all his target! Wonderful :)

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  16. Wow what a fabulous story - you must be so so proud of him. Such great news, I bet he's a happy bunny :)

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  17. That's brilliant Mr K, well done and high five :D xx

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  18. Go K! Well done, no wonder you're brimming with pride. x

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  19. He sounds like a brilliant superhero :D to be that determind now makes me think he will grow to be a fantastic adult :)

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  20. Such lovely news. You must be one proud mama x

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  21. Great news, I will pass this on to a good friend whose children suffer from a rare form of vanishing white matter disease, she may find some encouragement here!

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    1. Absolutely having a child with special needs isn't easy so if my post ehlps support another in the same situation then I'm happy x

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  22. Bless him, he's doing so well - what a star! :)

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  23. I think my comment vanished! He's doing very well - keep it up young man! :)

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    1. No sorry Jen didn't delete I just hadn't got round to moderating the recent comments thank you x

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  24. Just would like to say a huge thank you to all who ave taken the time to comment it as made Mr K grin from ear to ear.

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  25. Well done Mr K! What a super duper superhero :D

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